Words by Smiley Team
Today, 26th March 2021 is Purple Day, when people around the world raise awareness about epilepsy. Created by a young girl with this central nervous system disorder, the awareness day is marked by charities and individuals worldwide. Supporters use the occasion to dispel myths about seizures and talk about the impact it has, all while wearing, baking and having fun with the colour purple.
Eight-year-old Cassidy from Canada started Purple Day in 2008, a year after she was diagnosed with complex partial epilepsy. Affecting many areas of her life, from swimming lessons to walking to school, the disorder made her feel isolated and alone.
So, together with the help of her family, her teachers and the Epilepsy Association of Nova Scotia, she launched a day for people with epilepsy to feel supported and part of a community. She chose purple to mark the occasion because lavender is the international colour representing epilepsy.
Digital fundraising lead at the UK-based charity, Young Epilepsy, Martha Knight, explained: “Days like Purple Day are fantastic for raising money, but more importantly it also starts a conversation and people who may have never heard of epilepsy can learn how much it affects someone’s life.”
Purple Day 2021 has kicked off to a good start, as Martha elaborated: “It’s been so busy online – but the best kind of busy; people have been sharing their stories of diagnosis, we’re getting pics from schools and colleges who are taking part, and everyone has been so generous with donations.
“We’ll know the full extent next week when it’s all calmed down, but we are so humbled and appreciative of the lengths our supporters are going to.”
Those with epilepsy often experience severe limitations in many areas of their life including education, mobility, relationships and employment. The disorder involves electrical bursts disrupting the brain and bringing on seizures. If not safely handled, these can restrict the person’s breathing and, in the worst instances, lead to death.
“Epilepsy is such a misunderstood condition,” Martha added. “It’s far more complex than you might realise, and being diagnosed can be the most terrifying experience, for both the child and their family.”
This year, Young Epilepsy is inviting its supporters to #GoPurple, hosting a purple-themed house party, wearing purple or taking on a fitness challenge dressed in purple.
To help the charity support young people, children and their families deal with the impact of epilepsy, donate here.
Find more information about Purple Day on Young Epilepsy’s website.
