Words by Harrison Read
AJ & Curtis Pritchard are on a mission to spread awareness of some incredible causes, one charity visit at a time. Fresh from attending the 8th annual Smiley Charity Film Awards, the dynamic duo is gearing up for their next adventure.
AJ & Curtis Pritchard are on a mission to spread awareness of some incredible causes, one charity visit at a time. Fresh from attending the 8th annual Smiley Charity Film Awards, the dynamic duo is gearing up for their next adventure.
Their latest stop? Timothy Syndrome Alliance.
Timothy Syndrome Alliance is a charity dedicated to supporting individuals and families affected by CACNA1C-related disorders, including Timothy Syndrome and LongQT8, a rare genetic disorder characterised by heart problems, developmental delays, and other medical challenges. With a focus on raising awareness, funding research, and providing resources, Timothy Syndrome Alliance plays a crucial role in improving the lives of those impacted by this condition.
Joining forces with Timothy Syndrome Alliance, AJ & Curtis aim to shine a spotlight on the importance of support networks for rare diseases and the power of community in driving positive change. As advocates for making a difference, the brothers were eager to learn more about CACNA1C and lend their voices to the cause.
Calvin is all about animals, especially horses, and when AJ & Curtis heard about that, they knew they had to make Calvin's day. So, they whisked him off to Riding for the Disabled Centre, Park Lane Stables - a place where horses and people help each other out, leaving with smiles bigger than when they arrived.
Sophie's been through it all, trying to find answers, and now she's leading the charge at the charity, supporting folks living with CACNA1C-related disorders including Timothy Syndrome and LongQT8, their families, and getting more healthcare pros on board. By having real chats and sharing stories, they're aiming to build connections and give a boost to anyone dealing with challenges as a result of changes to the CACNA1C gene.
One of the main goals AJ and Curtis had on their visit was to get new supporters backing Timothy Syndrome Alliance's projects, whether that's through giving cash, volunteering, or getting the word out there. By getting behind this cause, AJ & Curtis are hoping to make a real difference in the lives of those dealing with CACNA1C-related disorders including Timothy Syndrome and LongQT8.
